Filed under: autism and autism spectrum disorders, philosophy, photography | Tags: photography
September 22nd I attended a meeting to hear a guest lecture from one of my heroes, Los Angeles photographer Joe Buissink on using our passionate love for our subject to fuel our creativity. I knew that he had created a beautiful book on autistic children, but had not known until then that he also had autistic children.
The creative black and white family portraits in his slideshow moved me to tears, especially the ones in which I recognized the body language and behavior of my son. He is usually pretty easygoing about being photographed, but Joe’s work made me want to be more persistent in capturing the beautiful images I see of him that catch the more subtle aspects of his personality and showing some of them as artwork.
Though most everyone wanted to talk photography, I spoke to him as a member of our select club. In and around what we do for our profession, we have children who can break open our hearts with their way of living. More and more I am beginning to understand that this opened, receptive state of mind offers some valuable lessons for my life for as well.
Filed under: Special needs parenting, philosophy | Tags: consciousness, parenting, relationships, Special needs parenting, spirituality

Here’s a special gift for all us crazy busy parents: a “spa day”– at your computer. Let the music or the simple natural sound of the water help you get grounded and focused on what is important in your life–you.
http://www.serenitypathways.com/virtualspajacuzzi.htm
I would also like to send along some relevance from Abraham-Hicks, the author of The Secret:
“The most significant thing for a parent to contribute to anyone is their own Connection and their own stability. An effective parent is a parent who laughs easily and often, and who doesn’t take things too seriously.”
Take time to enjoy the “here and now” with your children, your family, your life and yourself.
Filed under: homeschooling, unschooling | Tags: computer drawings, designs, illustrations, imaginary creatures, monsters
My son is an artist with an assured hand on the mouse.

I am amazed at the variety of the images that flow from his imagination.

My daughter loves me.
My son loves me.
My cat loves me.
Even my husbands and lovers past love me.
But the best thing of all
is that
now
I love me.
Filed under: Special needs parenting, autism and autism spectrum disorders, homeschooling, philosophy, unschooling
This past week I received a call back from a special-ed attorney whom I respect. When she asked me, “Why isn’t he in school?” I felt like I really couldn’t say why except I didn’t want him to. Part of me wanted to say, I’ve got it all under control, thank you, and another part wanted to blubber about all this anxiety I fear in beginning the process of dealing with doctors and psychologists and school bureaucrats again.
As an intuitive person, the conferences with teachers, principals and autism-department officials lit up old energy memories from my own childhood battles with teachers and authority figures so much I was scrambled, scattered and useless for days after a conference.
We have been drifting a bit, unschooling and keeping things relaxed regarding school since about this time last year. I realized that we both had been in need of a rest from the toxicity of our last public school experience, and that I, more than he, was dragging my feet about taking him to Rush to get an workup and assessment to get home-bound services started.
In the meantime, I have been studying seriously as a psychic, and have been making some pretty heavy-duty changes in my energy. I had been wanting a different set of eyes to look at my thoughts about my son’s education. A clear look, without guilt, shame or baggage from the past. And I realized that there had also been a big shift internally in the way I wanted to consider about him now.
I did not want to confer with professionals about his Asperger’s, his anxiety, problems with impulse control, blow-ups, meltdowns and aggression. I did not want to talk about trying to get him into a four-walled school again, with good intentioned teachers stretched too thin to help, and about my fears of having him shamed and excoriated for his mistakes.
I wanted to find ways to encourage and support his strengths and possibilities.
And along came lots and lots of information on RDI . I have been encouraged by reading Tammy Glaser’s articulate blog on this therapy, and have mets lots of great parents on the Yahoo groups and related links.
In the meantime I am reading Ross Greene’s excellent book, “Lost at School”, to use different strategies to address working on writing, the part of the school day still guaranteed to cause a meltdown if it’s more than writing in his journal. (I’m on hold to get his other book, “The Explosive Child”) and I’m focused and positive for the first time in months.
And hopefully here to have a record I can to refer to to see how far he’s come
Filed under: Special needs parenting, autism and autism spectrum disorders, homeschooling, philosophy, unschooling
A conversation about what my son remembered about his past brought up the idea of helping to improve his memory by photographing and videotaping his activities to help him remember.
Videos can also be used to help see a picture for the future. I am reprinting a beautiful, inspirational article sent to me by one of my homeschooling moms entitled
What You Could See If You Really Looked
by Shannon Coe
Imagine a home video taken during the late 70’s. The black and white screen, the static, fuzzy feel of the movie. On it are two little girls and a stick. The oldest girl is using the stick with such showmanship. She is twirling, spinning, using the stick as art. She looks at the camera and smiles, all the while flipping and making magic with the stick. The other little girl gets a turn with the stick. What does she do? She takes a much more practical approach and starts digging with the stick. She uses it to pretend she is fishing or vaulting. She is digging a garden. It is a tool in her hands. Now fast forward thirty years and what are those little girls doing? One is a professional photographer and one designs curriculum. One deals with art and one focuses on tools for the homeschooler.
If we would just focus a little bit more, watch them play a little longer, really see what they do with the objects in their hand, we would be better equipped to help our children prepare for their lives outside our home. Not just in play, but the way a child does their school work, or the subjects they excel and have confidence in are all clues about the design the Creator used for this little soul. Focusing and paying attention will allow you to focus on the abilities this child was instilled with.
After thinking back on the home videos of me and my sister, I am intrigued with the realization that it was evident way back then the road we were meant to take. I wonder if we took time to rewatch our home videos of our children, if looking for clues, how much we would really see and learn about them? It will save you time and money when purchasing next year’s school curriculum, save you sorrow at the table as you try to use an approach that just does not fit with the design, or even compel you to study and learn more about children and the different ways of learning. It never dawned on me until my sister and I were talking how early it became apparent where our talents would take us. It was so evident now that we look back.
I hope this article encourages others. I am a huge fan of talking about the design of the Creator and the purpose for our children. It is easier for me as I am seeing my adult children living out their purpose that was so obvious as children. And as both those purposes involve risk, (police and Marine) it brings me greater comfort than people can imagine.
This is where I go when I am afraid for them, that THIS was the plan by God.

Filed under: Special needs parenting, autism and autism spectrum disorders, homeschooling, philosophy | Tags: love, relationships

I was moved to tears reading an ABC article about a young man and woman on the spectrum talking about being in a romantic relationship and dealing with the challenges their autism causes. My son is a slender, neat, handsome boy, and the years he was in public school seemed embarrassed if girls would say anything to him. Partly because he was eleven, but also partly because he didn’t really know what to say to anyone who didn’t play games on a Nintendo.
But he turns into a teenager this year, and as he grows older, it is my job to help him navigate through puberty and practice the skills of interactions with the opposite sex. The story is an individual example, and may be rare in the scheme of things, but it gave me hope that my son’s life might also have love in it…a special person who will understand and accept him for who he is, and let him be as he is.
Filed under: Special needs parenting, autism and autism spectrum disorders, homeschooling, philosophy, unschooling

My son hasn’t gone outside to exercise or play a lot this winter. Since we don’t drive regularly, and he doesn’t ride a bike, I have been kinda pragmatic about going out alone to do shopping and getting what we need during wretched weather. Sometimes I’ve felt like an early pioneer woman, out in the elements all covered in snow with my groceries on my back, and it’s better that he’s warm and dry and safe at home.
But I think it’s time to begin “stretching” him a little more–starting to bring him out with me in a variety of situations to practice real-life strategies for communication and problem-solving. We can walk around and learn the neighborhood, play as we walk and talk, and look for small-scale, slower-speed ways to practice and experience new behaviours until he feels able to handle them himself.
Filed under: Special needs parenting, autism and autism spectrum disorders, homeschooling, philosophy | Tags: asperger syndrome, autism, special needs, Special needs parenting

We both watched the inauguration ceremonies live on TV yesterday, my guy wrapped up to his nose in his security blanket, something he does when things are a little emotional and scary to him. I looked at the sea of bodies in DC, shots of the thousands on thousands of people braving the cold to see it in person, and probably would have been happily photographing the faces and atmosphere years ago.
But twelve years ago my life changed in a big way and large, exuberant crowds are a thing of the past.
But we are a part of America, too, and whether we are present physically or in spirit, there are thousands on thousands of families with special needs children are praying that this new administration will support our struggles for proper care, schooling and protection for our children–some who are being home-schooled because they have no other options–because the system has failed them so far.
In the spirit of the occasion, I am reprinting an article written by Huffington Post columnist Kim Stagliano “If the First Child Had Autism.”
As a Mom, one of the highlights of the inauguration was watching the first children, Miss Malia and Miss Sasha Obama, revel in their father’s day. They were poised and yet still childlike. Eyes bright. Smiles wide.
Their mother, our elegant new First Lady, was able to fully share the day with her darling daughters. Did you notice the glances and grins they shared? I sure did.
And then I became sad.
As an autism Mom, I thought about how different the day would be if the First Lady had a child with autism. Here’s one scenario:
The First Lady is holding her child’s hand tightly as they walk toward their seats, her smile tempered by the interference from her autismometer, the scanning system she uses at all times to gauge her child’s mood, temperment, ability to manage the input and to anticipate a meltdown. In her other hand she holds a metal ring on which hang dozens of plastic cards with simple pictures and words. It’s an odd accessory.
The boy is wearing a pair of bulky, Bose noise canceling headphones to help him tune out the roar of the crowd. His eyes are cast down to the floorboards.
The lines laid out before him capture his attention. He stops. He sits down.
A brief look of panic crosses his mother’s face. She erases it. Then gently, lovingly signs, “stand up.”
He lies down.
She flips the pictures to the word “stand” and shows it to him.
He covers his eyes.
She starts to perspire despite the cold, turns to her Mom and nods. The older woman responds and reaches into the bag she is carrying. She hands the child a Thomas the Tank engine toy. He accepts it, clutching the toy, waving it in front of his face.
He stands.
His mother’s shoulders drop a few inches as they make their way to their seats.
She tries to watch her husband, to admire his handsome face and take note of his momentous day. This is his day. But autism is along for the ride. As always. When the speaker (who was it again?) finishes, her son’s voice rings out amid the cacophony of applause, “A clue! A clue! We need our handy dandy notebook!”
She breathes out — shows her son another small card. “Quiet.” He squirms. Her mother hands her a small surgical brush with which she strokes her son’s palms.
Her husband is about to take the oath. He looks at her with his, “Are we OK?” expression. She will not add to the gravity of the job he is about to accept. She will not cloud his day. She smiles and winks.
She takes her son’s hand and together they stand. Her mother wraps her arms around the boy, applying pressure to his torso.
The President takes his oath. “Elmo Loves You!” cries the boy. The crowd emits a nervous laugh. The President bends to his son, kisses his head. The new First Lady takes her child’s hand and fights back tears, praying her face reveals nothing but love and pride.
The First Family waves to the throng of supporters. To the world. The boy waggles his fingers in front of his eyes. His head nods to a song only he can hear. The First Lady kisses her husband, her hands cup his face for a moment.
In that second, the boy bolts up the aisle. There is a large, wet stain on his pants as he scrabbles toward an exit. The day is simply too much for him.
His grandmother is right behind him. Leaving her daughter and son-in-law, now the First Lady and President of the United States.
The next day, the President announces an initiative to study every possible cause of autism from genes to vaccines and to spend millions on treatment.
In four years, he plans to have his son speak at the inauguration for his second term.


